So we saw the surgeon briefly this morning. He did say that they still don't have a definitive plan of action there are a lot of people working together in order to make the best options available to Jimmy. We wish we knew more, but we appreciate the thought and consideration that is going into his care. He did say that preliminary blood tests for transplant are favorable.
Holy cannolis, I accidentally deleted everything that I had written! UGH!!!!
So, lets see what was I saying... Although, Jimmy is not a fan of the transplant option, it could go either way for me. I just want him to be with me as long as I can get him. Pretty selfish, huh? But, I do want to honor his wishes and I will support him in whatever direction he feels the most comfortable taking.
There has been talk about moving him over to St. Luke's and out of Texas Children's, but we have not been told when or why this might occur. The only thing that makes since is that is where they would do a transplant, should it come to that. Our surgeon has privliges at both hospitals, so it's possible that they could complete the fontan conversion over there as well, if that is the way that we decide to go...So at this point, we are just waiting to have a conference with the congenital heart docs, the surgeon(s) and the transplant peeps.
The immediate plan is to get Jimmy up and moving today. He ate dinner last night and tolerated it well. This morning was french toast, eggs, bacon, OJ and milk...YUMMY! Last night he told me he felt weak, this morning he says he's stronger, so continuing in that directions is obviously what we wish to do. He still has a chest tube which is draining a fair amount of serosanguanous fluid, plan is to leave it one more day. He continues to get Lasix to help him get rid of excess fluid. He still has the morphine pain pump. All his vital signs are stable. He is recovering well from the events of Wednesday.
Again, thank you for your support and love. We are both thrilled and deeply touched to have such generous and gracious people in our lives. Stay tuned for further updates.
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Tammie, you are such an amazing and strong person. I know we don't know each other that well but I absolutely adore Jimmy. He is the one person that can always get me smiling when I am down. You are a very lucky woman and you are stronger than I think I ever could be. My prayers, thoughts and a million hugs go out to you and your family. He is lucky to have a wife like you. Many blessings - Newton is doing great...no worries :)
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