Post-op day 5: 5:19pm

The CT scan results are in and a biopsy will be necessary. However, we are not going to have it done this trip. Much to our surprise the docs have decided to discharge Jimmy this evening. We are going to go back to the hotel tonight, perhaps, if he feels up to it, leave out tomorrow sometime to come back home.

WOW!!! What a whirlwind of events!

So, now what ,right? They want him to come back in mid to late January 2010 for additional work up to get placed on the transplant list. After that, the real discussion of risk vs. benefit of the different options will begin.

There are risks involved in regards to proceeding with the original plans. And there are questions of how much real time will that buy. The Fontan conversion is a palliative surgery, not a cure. I am sure that there will be much discussion before it is all said and done.

As for now, they want Jimmy to lose some weight, enjoy the holidays and get ready for next year!

And I thought the stressful times would be nearing an end with the end of this year.!! It appears that they are just beginning. I will continue to update the blog with information as it becomes available.

I know I keep saying it, but THANK YOU ALL for everything that you have given of yourselves. You each deserve a HUGE return on the emotional investment that you have given so selflessly to our family! May you all have a beautiful holiday season and a prosperous New Year. God Bless- Jimmy and Tammie