Post-op day 4: 7:54pm

Good evening all. The news at this hour is that we remain at Texas Children's in the ICU...could not move to St. Luke's because the insurance company is unavailable on Sundays. Good news for Jimmy I suppose, he gets to be doted on by these children nurses one more day.

Jake and I spent most of the day at the Children's Museum. His favorite part was putting together the molecules. He made water, ethanol, carbon dioxide, methane and sugar. He said that the sugar molecule was the most difficult by far. He didn't even want to attempt the caffeine molecule. Maybe next time. He also played chase with a lighted floor. We made things that would fly and he built a car out of Lego's and sent it sailing down a track. It was pretty great. He really enjoyed himself but wished that his dad could have been there with him.

Jimmy was pretty active today, he walked the unit a couple of time, sat up in the chair for the majority of the day and visited with his parents while we were at the museum. He said he was feeling a little grumpy this evening and attributes it to a lack of sleep. He said he didn't sleep well last night at all. Tonight should be better, he's got some good drugs ordered for pain, there's no chest x-ray at 4 am and he didn't have a water pill just before laying down. I hear him snoring as I sit here and type. He needs some good rest. I hope he gets it. Tomorrow is a potentially difficult day. As it looks at this point, it will really probably be Tuesday before we get our questions answered.... Like I mentioned before, Jimmy is still hopeful that the surgeon will opt to finish the surgery. That makes me nervous. But then again, it all makes me nervous. I don't want him to give up. I am trying my best to help him remain positive. He mentioned quality vs. quantity of life this evening. That tells me his mind is a working, but he hasn't been very verbal. He has made it clear to me in the past that he places a high value on quality of life. That, I am sure, will play a factor in what decisions are made.

I know you all are continuing to pray for Jimmy. We appreciate all you have given of yourselves. My mom has always said that God will not give you more than you can handle. It seems that is always the truth. Until tomorrow....