Ok so here's the update at this hour.
Jimmy is stable. They have elected to stop the surgery. The original fontan has gotten so large that it has actually fused with the sternum. That is why they had the trouble with nicking and causing bleeding. Jimmy has received 8 units of blood and 4 units of plasma. They had no emergent way in which to place him on the bypass maching due to the scarring of his femoral arteries. Had they not stopped, he would not have made it through the surgery. I am very disappointed.
The options now are that we let him recover for a few days, then try again -OR- they can try to manage him medically until he is no longer managable then place him on the transplant list, if he would even be accepted to the transplant list-OR-part of the problem is that he is extremely overweight for his frame size. So they have said that perhaps he should be put on a very strict weightloss program over the next year and try again.
The surgeon wants Jimmy to participate in this decision making process. So the goal is to wake him up, get him off the ventilator, and ask him what he wants to do.
This is absolutely the hardest, most difficult situation I have or ever want to be in.
I wish I had better news for you all. That's all for now. Thank you all for your well wishes.
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It is good news girl...you still have him and I know that you guys will make the right decision. My prayers and thoughts are with you and your family. Newton is welcome as long as he needs to be here ;)
ReplyDeleteThank youfor your positive comments. I need it.
ReplyDeleteThank you so much for keeping all of us updated. Justin, Jen and I have you in our thoughts and prayers
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